A year ago...

One year ago this morning at 10 am we left Arizona, family, friends, in short, home.  We hopped in our vehicles  loaded for a long 3 day road trip across country to a new state, city, job, ward, school, in short, home.

Its been a fun year.  Full of great memories.  New adventures.  New places to see.  New things to do and experience. New people to meet.  New friends to make.  New struggles to endure.  New Dr's for everyone.  New problems to overcome.  New diagnosis added on top of the old ones.  New books to read.  New schools to attend.  And for mom?  New pictures to take.

This year hasn't been without its issues.  We lost several beautiful A-T kids & 2 A-T adults.  We prayed for sicknesses to pass, for friends far & wide to heal & lives to be spared.  We wept bitter tears over our losses & some over the struggles, but we made it through.  There is more gray on top.  More wrinkles on our faces & new worries & stresses for the New Year already lining up. 

I feel like I am standing on the precipice of a great overlook.  Or maybe I am standing at the invisible time line of the old year ending & the new year beginning.  Whatever it is I can feel the change in the air.  Whether its for good or bad I couldn't say.  I just know the feeling has been steadily building for the last few months.  Usually when I say I can feel something coming Captain Awesome just shakes his head at me & smiles benignly as though to say, "ok sweetheart, whatever you say."  Then when the change eventually comes he just shakes his head & I get the feeling he wonders about me.  I have to admit I like that I might have him wondering. 

So the New Year approaches & with it we look forward to making more memories, spending quality time together & with family & friends far & near.  We look forward to more pictures, more fun, more vacations, more experiences & less complications, struggles & stresses. 

I don't do the whole New Year's Resolution thing.  They never last.  I can tell you what I wish for though.

Jess's Wish List for 2011:

A CURE for A-T!!!  For Liam. 

That's it. 

I don't think I am asking for too much.  I just want my child to live a life without pain, sickness & fear.  A life where he gets to run & jump & play with his friends like a regular kid.  A life that doesn't have a shadow looming over it.  Basically I want my child to have a chance at life. 

I pray that each of you find health, happiness & fullfillment awaiting you in the year to come.  Many blessings be upon you all.  May you hearts find joy in the simple things around & may your minds be at peace & may you find satisfaction in yourself & others. 

Happy New Year!!!

Welcome 2011!!!